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Klub Bechterevikov • Zobrazenie témy - Vlastný Mount Everest

Vlastný Mount Everest

Ako sa Vám žije s bechterevikom

Vlastný Mount Everest

Poslaťod ansysko » Ned 10. Apr 2016 13:59:35

Ahojte priatelia a kolegovia v chorobe. S bechterevom spolunažívam už od roku 1995, aj keď zo začiatku mi diagnostikovali len výrastky na stavcoch a neurologička mi doporučila naučiť sa s ním žiť. Tak som žil s týmto verdiktom až do roku 2000 s pomocou brufenu a veralových injekcií. Brufen som jedol ako lentilky a keď už boli bolesti neskutočné zbehol som si na pohotovosť po záchranu v podobe veralovej injekcie. Po čase, keď už sa rodina nemohla pozerať na mňa ako som predklonený a to nehovorím o nociach, keď som sa budil na to ako kričím od bolesti pri pretočení sa v posteli. Navštívil som neurológa a ten mi povedal hneď ako ma videl: "Vyzerá to na bechtereva, urobíme testy a uvidíme." Bohužiaľ mal pravdu. Bechterev V. stupňa , vravím si super konečne viem čo mi je. V ten deň mi v hlave zostala jedna myšlienka, ktorú mi ten doktor povedal: " Táto choroba nieje bohviečo, ale nieje to rakovina dá sa s ňou žiť." Tak začal môj boj z touto chorobou.

mount-everest.png

Každý deň bechterevik zdoláva svoj vlastný Mount Everest, či už je to cesta do práce MHD, alebo výstup do schodov, alebo len obyčajné oblečenie si svetra či ponožiek. Pre normálneho človeka bežné veci, ktoré robí mechanicky sú pre Nás bechterevikov bojom seba samých so svojím telom. Také obyčajné ostrihanie nechtov na nohách to je čistý zážitok a mnoho ďalších a ďalších bežných úkonov a pohybov. Keby som mal popísať všetky tie akože jednoduché pohyby, pri ktorých sme my bechterevici obmedzený pohybom svojho tela, tak to by bolo asi na román.

Pomáha mi pozitívne myslenie a robenie si srandy sám zo seba, inak by som sa asi zbláznil. Niekedy ma síce prepadne depresia, ale po čase sa mi ju podarí odtlačiť na vedľajšiu koľaj a teším sa ďalej zo svojho života bechterevika.
Nemáte oprávnenie prezerať súbory priložené v tomto príspevku.
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ansysko
Administrátor
Administrátor
 
Príspevky: 508
Registrovaný: Uto 19. Okt 2010 13:48:43
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Stav: Bechterevik V. stupňa

Re: Vlastný Mount Everest

Poslaťod andilek » Pon 11. Apr 2016 21:21:04

Pekne napísané a je to pravda, my s našou chorobou denne prekonávame sami seba a bojujeme s touto chorobou ako sa dá. Preto klobúk dolu pred každým bojovníkom s bechterevom.
:bry: :bry: :bry: :bry: :bry: :bry: :bry:
Obrázok užívateľa
andilek
Bechterevik
Bechterevik
 
Príspevky: 58
Registrovaný: Uto 08. Mar 2011 22:17:20
Stav: Bechterevik V. stupňa


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